Development of a haemophilia physiotherapy intervention for optimum musculoskeletal health in children

PROJECT STATUS: Completed
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START DATE AND DURATION: October 2020 - December 2024
Summary

Children (predominantly males) are born with haemophilia, a disorder where the blood does not clot normally, leading to bleeding into muscles and joints. As a result, muscles become weak, joints become painful and difficult to move. There is a lack of robust evidence to determine whether muscle strengthening exercise can improve long-term health outcomes for young children with haemophilia. In a random allocation, boys with haemophilia will be asked to complete a 12-week exercise routine to strengthen their leg muscles.

The research will inform future clinical guidelines, recommendations and training to deliver the intervention incorporated into the educational framework of the Haemophilia Chartered Physiotherapists Association. The project findings will help parents make informed decisions about their child's care, improving their wellbeing, quality of life and lessening disability later in life.

Partners & Collaborators

London School of Hygiene & Tropical Medicine (LSHTM)

East Kent Hospitals University NHS Foundation Trust (EKHUFT)

Great Ormond Street Hospital for Children NHS Foundation Trust (GOSG)

University of Kent

University College London (UCL)

The Haemophilia Society

Ferhana Hashem (Kent), Tracy Pellatt-Higgins (Kent), Eirini-Christina Saloniki (UCL)

Lead Investigator
David Stephensen (EKHUFT)
Investigating Team
Melanie Bladen (GOSH)
Liz Carroll (The Haemophilia Society)
Ferhana Hashem (Kent)
Tracy Pellatt-Higgins (Kent)
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